Category: Living with PD

  • More on Support Groups

    From Parkinson’s Foundation: Nearly one million people in the U.S. are living with Parkinson’s disease (PD), which is more than the combined number of people diagnosed with multiple sclerosis, muscular dystrophy and Lou Gehrig’s disease (or Amyotrophic Lateral Sclerosis). This is expected to rise to 1.2 million by 2030. Approximately 60,000 Americans are diagnosed with PD…

  • Support Groups

    There is a saying in the Parkinson’s Community: When you have met one person with Parkinson’s, you’ve met One person with Parkinson’s.  Basically, every case is unique.  Some may have tremors, others walking problems and others might be bothered with small handwriting or soft voice.       The current treatment options are relatively new. Even the…

  • Travel and Parkinson’s

    After a diagnosis of Parkinson’s Disease, there is often a period where  you  are scared and unsure of what the future will bring but if you take an attitude of education and exercise, there can be many great years ahead.   At some point however, we all slow down and then there is a “new normal”…

  • Aware in Care

    It’s April and for many of us that means travel.   Sometimes we travel between homes, other times we travel to new places.  Travel can be more hazardous as we age, but it is especially worrisome to a Person with Parkinson’s. The most obvious concern is to take medications on time.  This can be tricky when…

  • Review of “Shaky Hands” by Dr Soania Mathur

    This  book  is a great addition to our library of Parkinson’s literature.   I’ve already sent a copy to my adult children..  My daughter questioned it and I said no, it’s not for the 2 and 5 year olds, it’s for  you and your husband to read and hopefully be more understanding  of what we are…

  • What to do to “live well” when all seems lost

    7:19 AM This case study is based on a call from a long time friend’s relative.  Since I don’t know all of the details, let’s consider this a fictional case where the names and exact details are not the same. Harriet’s husband is ready to leave her after 30+ years of marriage, 20+ she has…

  • Voting and Parkinson’s

    Of course each of our state is different on how the voting process works. Even in the county where I live in upstate New York, Steuben, our town of Caton caucuses for the Democratic candidates and the Republicans have a primary election. We know that one symptom of Parkinson’s is t hat your handwriting gets…