Support Groups

There is a saying in the Parkinson’s Community: When you have met one person with Parkinson’s, you’ve met One person with Parkinson’s.  Basically, every case is unique.  Some may have tremors, others walking problems and others might be bothered with small handwriting or soft voice.

      The current treatment options are relatively new. Even the “gold standard” medication, Sinemet, has only been on the market since the early 1970’s so my parent’s generation saw Parkinson’s as a tragic diagnosis, but today there are many options.

      Today we are taught that you don’t die from Parkinson’s, you die with it.  My personal view of Parkinson’s (which I’ve had for 18 years) is to AXE it (Advocacy, Exercise and Education).  While Parkinson’s is degenerative, I’ve managed to keep my case pretty stable and have even improved in the seven years we’ve been living at Valencia Shores.

      So, if a doctor has mentioned Parkinson’s as a possible diagnosis or if you are already dealing with Parkinson’s, please consider joining a support group.             


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