My Living Well With Parkinson’s

Welcome.  This site is designed for my friends in the greater Southern Tier of NY (Corning, Elmira, Watkins Glen, etc.) and Boynton Beach Florida where we travel between at various times of the year and are involved in exercise programs such as Rock Steady Boxing and Support groups.

Very briefly (see my other website, for more detail), I’ve had Parkinson’s (complicated by spinal stenosis and degenerative spine  issues) since 2004. So that’s 16 years.  We retired 5 years ago because we were afraid I might make mistakes due to typing errors among other reasons.   We’ve

We started traveling around 2005 and have taken about 30 land and cruise trips since then. However I injured my back (possibly due to dyskinesias ) around 2014 and was so bad that at least two trips I had to use a wheelchair. Thanks to great neurological physical therapists and trainers  I’m now doing great.  I’ve been doing advocacy for Parkinson’s Foundation and other volunteer work (Hadassah) and socializing more (bridge, mahjong, etc).  Most days I can meet people without having to explain that “I have Parkinson’s”

So this website was started to help the Montour Falls based support group (the waterfall is in the middle of town) but it includes lots of other information and references as well.

Exercise, Research and Use a doctor who specializes in Parkinson’s (Movement Disorder Specialist) to Live Well with this disease.








One response to “My Living Well With Parkinson’s”

  1. John Myers Avatar
    John Myers

    My symptoms started at the age of 47. My fingers on my left hand were stiff and were difficult to move. People noticed that my walk was not normal. I was often asked did I hurt.I noticed nothing different about my walk. It was difficult getting up from a chair and getting out of a car. I was diagnosed a year later, it was the onset of tremors starting in my right hand that caused my other symptoms to be recognized as Parkinson’s.I am now 59. With the new herbal medicine i purchase from totalcureherbsfoundation .com was my only way to get fast relief from this PD,their herbal supplement effectively reverse my Parkinson’s disease condition and alleviate all my symptoms. 

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